General Conference Agenda
May 2-3, 2008
Thursday, May 1, 2008
Registration 8-10PM
Friday, May 2, 2008
| 8:00 am |
Registration |
| 8:45 am |
Welcome: Barbara
McManus, President, PWANY, |
| 9:00 am |
Keynote Speaker: A
Year of Change, Diane Jones-Ritter, Commissioner, OMRDD |
| 10:00 am |
“The Growing Strength of the PWS Network”:
Craig Polhemus, Executive Director, PWSA (USA) |
| 10:30 am |
Break |
| 10:45 am |
Concurrent Sessions
Session a) Health Supervision Guidelines for Children with PWS:
Shawn McCandless, MD
Session b) Managing Your Child’s Individualized Service Plan (ISP):
Ann Green, Director of Quality Improvement, CLAS, Inc. |
| 11:45 am |
Concurrent Sessions
Session a) Are We Any Closer to Understanding How the PWS Brain
Works:
Jenifer Zarcone, PhD, URMC
Session b) Sensory Integration: Treating the behavioral and motor
challenges
of PWS: Janice M. Agarwal, P.T.
Session c) Prader-Willi syndrome “101”: Shawn McCandless, MD |
| 12:45 pm |
Lunch |
| 1:45 p.m. |
Alliance Member Meeting and Election of Officers
and Directors |
| 2:45 pm |
Concurrent Sessions:
Session a) The young child with PWS: P. T., Sensory Integration and
Scoliosis
Management: Janice M. Agarwal, P.T.
Session b) Understanding the PWS Student; Strategies for Success:
Mary K Zicardi
Session c) The Evolution of Growth Hormone:
Janalee Heinemann, MSW – PWSA (USA) |
| 3:45 pm |
Break |
| 4:00 pm |
Concurrent Sessions:
Session a) Preschool Issues for Children with PWS: Amy McDougall,
M. S.
Session b) Creating Positive Interventions: Breaking Down Behavior
and
its Functions: Maureen Tracey, BA Human Development, PBIS
Facilitator, and Parent of a child with PWS.
Session c) Completing the Circle of Support: Empowering and
Bolstering
Direct Support Professionals Working with Individuals with PWS:
Anne
Ogden, Assoc. Ex. Director, Catholic Charities
Jeff Covington, Director, Residential Services,
Catholic Charities |
| 5:00 pm |
Sessions End |
| 7:30 pm |
Alliance Reception |
Saturday, May 3, 2008
| 8:00 a.m. |
Registration |
| 8:45 a.m. |
Barbara McManus, President, PWANY |
| 9:00 a.m. |
Chiropractic and the Patient with Prader-Willi
Syndrome: Jamie H. Bassel, DC |
| 9:45 a.m. |
Concurrent Sessions
Session a) Intensive In-home Case Management: Ann McManus, MA, LCSW,
Michael Marchese, MA, LMHC, Latham Centers
Session b) Group Home Selection Guidelines for a Person with PWS:
Mary K Zicardi, PWSA (USA) , Terry O'Neill, SDC Jeff Covington, CCDS
Session c) Behavioral Management: Tips and Tricks: Patrice Carroll,
Advocates, Inc. |
| 10:45 a.m. |
Break |
| 11:00 a.m. |
Concurrent Sessions
Session a) What happens when I'm no longer here?
Lee Alan Ackerman,
Executive Director, Disabled and Alone
Session
b) Guardianship; What You Must Know: Edward Wilcenski, Esq. |
| 12:00 p.m. |
Lunch |
| 1:00 p.m. |
The CCDS/PWANY Families Support Services Grant a
Report; Past and Future:
Moderator: Henry Singer, PWANY
Panel:
Anne
Ogden, Assoc. Ex. Director, Catholic Charities
Linda LeTendre, Past Grant Coordinator,
Nina Roberto, Current Grant Coordinator |
| 1:30 p.m. |
Sharing Sessions
Session a) Ages 0-5 Moderator: Nina Roberto, Executive Director, PWANY
Session b) Ages 6-15 Moderator: Barbara McManus, President, PWANY
Session c) Ages 16 + Moderator: Janalee Heinemann, MSW, PWSA(USA)
Session d) Grandparents: Anne Rejack, CCDS |
| 3:00 p.m. |
Conference Ends |
Click here for Details about Presenters |
