Prader-Willi Syndrome News

National Prader-Willi Syndrome awareness in the NASCAR Craftsman Truck Series on Friday, November 16, 2007... 11/15/2007

Prader-Willi Syndrome Association to participate in CIBC World Markets Miracle Day 2007 Mark Your Calendars for Wednesday, December 5th! 11/10/2007

Prader-Willi Syndrome…The Hunger That Kills - 11/8/2007
Sonny Roberto (Richmond Hills, NY) is struggling with his disability

Halloween with Prader-Willi syndrome 10/28/2007
Jessika Dickinson (Grand Island, NY) prepares for Halloween without candy or parties.

World Series Not Necessary Here: Hurdle and the Colorado Rockies Are Already Prader-Willi Syndrome Association Champions 10/25/2007
October 25, 2007 (Sarasota, FL)—Manager Clint Hurdle and his Colorado Rockies baseball team have set an example and sent a message: ‘Don’t give up on the underdog,’ from a baseball team to individuals with Prader-Willi syndrome (PWS)

Sheldon Tarakan after a long battle with cancer 7/9/2007
Shelly was instrumental in the formation of the Prader-Willi Alliance of New York, Inc. 

Young man dies of Prader-Willi Syndrome 6/12/2007
25 year old Chris Leppard had suffered a lifelong struggle with Prader-Willi Syndrome, (PWS), died an untimely death on May 15, 2007.  Prader-Willi syndrome is the most common known genetic...

Genetic Disease Foundation Gala Dinner 6/11/2007
Because of several recent deaths from complications of Prader-Willi syndrome (PWS), a genetic eating disorder (see below), renewed interest has erupted for funding additional research to find a cure...

Winthrop Hospital hub for patients with Prader-Willi Syndrome 8/19/2007
Winthrop Provides A Light at the End of the Tunnel for Families, Patients with Rare Genetic Disorder Known as Prader-Willi Syndrome.

edited: 11/24/2007