Prader-Willi Alliance of New York, Inc.

Local Support

If you are the parent of a child with Prader-Willi syndrome and you need to talk with another parent who shares your concerns, please call one (or more) of the people listed below. These parents are eager to help, to offer advice, share their experiences, and do their best to comfort you in a time of great need. Don’t for one minute hesitate to make contact — we are here for you. You may contact parents via e-mail, if an e-mail address is listed. You may also send e-mail to and an Alliance representative will return your e-mail.
  • Jeannie Dickinson (Grand Island)
    (731) 773 3076
     
  • Gloria Cox (Manhattan)
    (212) 988-7350
     
  • Kathy Funk (Saratoga Springs)
    (518) 583-4115
     
  • Volena Howe (Rochester)
    (716) 271-5332
  • Daniel Maillet (Westchester)
    (914) 591-6425
  • Harry Persanis (Long Island)
    (516) 783-7508
     
  • Nina Roberto (Queens)
    (718) 846-6606
  •  Henry Singer (Brooklyn)
    (212) 619-0185 (work)
    (718) 783-0181 (home)

  • Barbara McManus (Niagara Falls)
    (716-731-2801)

P.O. Box 1114, Niagara Falls, NY 14304 * Phone:  (716) 276-2211 *  (800) 442-1655 * 
New York State Chapter of Prader-Willi Syndrome Association (USA)