Prader-Willi Alliance of NY, Inc.244 5th Avenue, Suite D-110New York, NY  10001

Telephone: (800) 442-1655
Email: alliance@prader-willi.org

Chapter of PWSA (USA)

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Acronyms of State Resources

OPWDD  (Office of People with Development Disability)

This agency is the primary source of services and information for the care of the disabled. It’s responsibility for providing services usually begins at age twenty-one. Recently they have coordinated some services for people with PWS as early as infancy. There is a PWS Coordinator responsible for the coordination of services to people with PWS whose telephone # is 518 473 6255.
Within OPWDD there is the Division of Quality Assurance whose responsibility it is to see that all programs provided by OPWDD meet the highest standards of quality.

OPWDD Links of Interest

MHA (Mental Health Association of New York State) This site provides information on legislature, news, advocacy, outreach, and prevention. There are also links to state MHA affiliates and other online resources. Their Information Center provides free fact sheets on many mental health issues. The National Consumer Supporter Technical Assistance Center provides assistance to mental health consumer supporter organizations across the country.

DDPC (Developmental Disabilities Planning Council) This agency is a primary source of grant money for projects directly or indirectly affecting the health and welfare of people with disabilities

DDSO (Developmental Disabilities Service Offices) There are fifteen DDSO’s throughout NYS each of them responsible for the services provided to the disabled within their geographic area of responsibility. Each DDSO has a PWS Coordinator who can assist you in your search for services.

ACCES-VR  Adult Career and Continuing Education Services-Vocational Rehabilitation (ACCES-VR) offers access to a full range of employment and independent living services that may be needed by persons with disabilities through their lives. Through its administration of vocational rehabilitation and independent living programs, VR coordinates policy and services relating to

New York State Education Department
New York State Department of Health
Best Buddies of New York

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