Links of Interest

 

  • Sesame Street for Parents
    Play together, grow together. Iconic videos, educational tips,
    fun activities and behind-the-scenes moments just for you—bring Sesame Street into your family’s everyday life.

  • Access to Mental Hygiene Records Pamphlet  this pamphlet describes the process to get clinical records in New York State http://cqc.ny.gov/advocacy/training-and-technical-assistance/access-to-mental-hygiene-records

  • Wrights law Web site “you’ll find hundreds of articles, cases, newsletters, and other information about special education law and advocacy in the Wrights Law Libraries. Parents, advocates, educators, and attorneys …http://www.wrightslaw.com

  • Making the Most of Your Parent-Teacher Conference Making the Most of Your Parent-Teacher Conference | Schwab Learning www.schwablearning.org

  • IDEA:  The Individuals with Disabilities Education Act (IDEA) is a law ensuring services to children with disabilities throughout the nation. IDEA governs how states and public agencies provide early intervention, special education and related services to more than 6.5 million eligible infants, toddlers, children and youth with disabilities. http://idea.ed.gov/

  • Genetics Home Reference – Genetics Home Reference is the National Library of Medicine’s web site for consumer information about genetic conditions and the genes or chromosomes related to those conditions. http://ghr.nlm.nih.gov/

  • Partners in Policymaking – Created for Partners , by Partners, we have voluntarily come together to build a united, sustainable community of Partners Graduates empowered for networking and systems advocacy. http://www.nyspip.org/

  • Social Security Disability Secrets – Applying for social security disability and SSI benefits can be difficult due to how long a claim may take and the high chance of being denied. But those who are denied disability can win benefits by utilizing the appeals process. To increase the chances of winning, applicants should learn about the system and file an appeal when a claim is denied. http://www.disabilitysecrets.com/

  • Access Pass – A program offered by the NYS Office Parks, Recreation, and Historic Preservation, the Access Pass enables children with a permanent disability free entry into NYS parks and swimming.  For more information contact http://nysparks.state.ny.us/.

  • Adaptive Sports Program – Provides sports instruction and recreational activities for individuals with special needs that enhance the participant’s self esteem and independence and to provide training to those associated with the student that enables them all to independently enjoy the recreational environment. For more information contact  http://www.adaptivesportsfoundation.org/.

  • The Double H Hole in the Woods – A program that offers summer and winter camps and activities for children 6-18 with special needs and/or a critical illenss. For more information you may contact http://www.doublehranch.org/.

  • Friday “Knights” Recreation Program – Recreation program on Friday nights from 6-8 at The College of St. Rose.  $25 per semester, ages 6-19, structured and supportive recreational program for children/adolescents who need social interaction beyond the school setting. Please contact Susan DeLuke, PhD 337-4914.

  • Sports Are For Everyone (SAFE) – A non-for-profit group in Clifton Park that provides team based sports for children, ages 7-14 with physical and/or cognitive special needs.  Activities include baseball, tennis, flag football, indoor basketball and soccer.  To find out more about the program http://www.sportsareforeveryone.org/

  • Stride – Dedicated to enriching the lives of children who have disabilities by offering sports and recreation programs and opportunities to include skiing, snowboarding, bowling, baseball, sailing, and golf.  For information contact 518-598-1279 or  www.stride.org.

  • Special Olympics of New York – Provides sports training and athletic competition to individuals with intellectual disabilities. For information, contact 800-836-6976, 465-0053, 388-0790 or  www.specialolympicsNY.org

  • Communicating with an Autistic Child: A Parent's Guide.


     

Prader-Willi Alliance of NY, Inc.244 5th Avenue, Suite D-110New York, NY  10001

Telephone: (800) 442-1655
Email: alliance@prader-willi.org

Chapter of PWSA (USA)

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