Was your child recently diagnosed with Prader-Willi Syndrome?

The PWANY is here to help you through this journey. From learning about the syndrome, finding medical professionals, navigating early intervention and the educational system or just having someone “who gets” it to talk to, we are here for you.

We can help you take those initial steps and will be here to support your loved one and your family

The PWANY Board is made up of parents and grandparents of those with PWS whose children span a  wide range of ages.

We have an Executive Director and a Director of Family Support who are also PWS Parents.

The PWANY keeps an extensive database of our membership and are able to help connect you with other families in your area.

Please know that we are only a phone call or email away!